Son captures mum’s heartbreaking battle with rare form of dementia ‘like a computer being taken apart bit by bit’

2 months ago 5

A SON who captured his mum's battle with dementia in 20,000 heartbreaking photographs says it was like seeing a "computer being taken apart, bit by bit".

Paul Bayfield spent three years documenting his mum's life, from her diagnosis to her death, in a bid to improve research and treatment.

A loving son documented his mum's battle with dementia - from diagnosis to her death - in a series of photographs

10

A loving son documented his mum's battle with dementia - from diagnosis to her death - in a series of photographs Credit: Apex News

Paul Bayfield took around 20,000 images of mum Janice's battle

10

Paul Bayfield took around 20,000 images of mum Janice's battle Credit: Apex News

He first knew there was something wrong with mother Janice Middleton while chatting to her on the phone from an assignment in Sri Lanka.

She was then diagnosed with dementia - and decided she'd allow her son to document her illness.

Miss Middleton was 70 when she was found to be suffering with Pick's Disease, a rare and aggressive form of the condition.

“We tried to turn it into something good," Mr Bayfield said,

"There is very little research about this particular form of dementia.

"We decided to create a story and answer questions for those going through the same thing.

“It’s very different creating a personal story.

Miss Middleton, pictured lying in bed, died three years after she was diagnosed with Pick's Disease

Miss Middleton, pictured lying in bed, died three years after she was diagnosed with Pick's Disease

Some of the most heartbreaking images captured by her son show her life after she was moved into a care home before the beginning of the lockdown

Some of the most heartbreaking images captured by her son show her life after she was moved into a care home before the beginning of the lockdown

"As a documentary photographer, I’m used to separating myself from it.

"It was a bit of a good defence mechanism. A camera can be a way of separating yourself and a bit of a shield.”

Mr Bayfield moved into his mum's Norwich home when she became too ill to care for herself.

Miss Middleton quickly lost her ability to speak - and the pair communicated via sign language.

Her motor skills - including the ability to swallow - were also badly affected.

He said: “It’s how it starts - good days and bad days - and it becomes good hours and bad hours.

"It’s like a computer being taken apart bit by bit.”

Mr Bayfield captured every element of his mum's life - from her daily activities to birthday parties and, eventually, the steps he took to help her eat

Mr Bayfield captured every element of his mum's life - from her daily activities to birthday parties and, eventually, the steps he took to help her eat

He initially moved into his mum's home to be her carer

10

He initially moved into his mum's home to be her carerCredit: Apex News

But as her condition worsened, she contracted pneumonia - and was treated in hospital before being moved into a care home for rehabilitation

But as her condition worsened, she contracted pneumonia - and was treated in hospital before being moved into a care home for rehabilitation

But the situation worsened when Miss Middleton contracted pneumonia and was moved to a care home to rehabilitate - just before the coronavirus lockdown began.

Mr Bayfield, who at the time was suffering an injury to his arm caused as he stopped his mum falling in the shower, was told he wouldn't be able to visit.

But even with "nobody coming in, nobody coming out", the devoted son continued visiting every day - waving to his mum through patio doors and even eating alongside her to help her remember how.

He said: “With Pick’s, when they have lost their ability to speak, they can often still sing as it’s a memory trigger.

“I would set up a table outside the patio window and I would take a meal time for myself and that would trigger a memory in her.

"She would start to eat with me.”

Sadly, as the months went on, Miss Middleton’s condition deteriorated.

Tragically, Miss Middleton - pictured at the seaside by her son - didn't recover enough to leave the home

10

Tragically, Miss Middleton - pictured at the seaside by her son - didn't recover enough to leave the homeCredit: Apex News

She was hospitalised a number of times when she fell ill, but died last month

10

She was hospitalised a number of times when she fell ill, but died last monthCredit: Apex News

Mr Bayfield said that, despite the death of his beloved mother, the project isn't over - and he hopes to write a book to help others suffering with the condition

Mr Bayfield said that, despite the death of his beloved mother, the project isn't over - and he hopes to write a book to help others suffering with the condition

She lost weight and was rushed to hospital after suffering pneumonia and a heart attack.

On October 13, she died at York House in Dereham with her son by her side.

Mr Bayfield's project, Keeping Mum, has now led to new forms of treatments for the condition.

The experimental treatments are on trial in the UK and the US.

He was also awarded a grant from the Bob and Diane Fund, set up by a woman who lost both of her parents to dementia.

The fund gives grants to storytellers documenting the disease first-hand.

Latest

DO OR DIE

Boris warns doctors would have to choose 'who lives & dies' without 2nd lockdown

Latest

STAR SHAMED

Johnny Depp beat ex Amber Heard 12 TIMES, judge rules as The Sun wins trial

SHUTDOWN

Boris Johnson announcement: What time is the PM's speech today, Monday November 2?

BABY BOON

Young children exempted from lockdown rule on meeting only one friend outside

TIMELINE OF TERROR

Horrifying details of Johnny Depp's 12 attacks on Amber Heard

Exclusive

FARE RAGE

Uber passenger's fury after being charged £111 for a TWO-MILE trip

The money allowed Mr Bayfield to be a carer full-time.

And despite his mum's death, the 40-year-old said his project isn't over - and he wants to create educational materials and even a book to support people going through the same illness.

To donate to the Bob and Diane fund, visit bobanddianefund.org

Work from home re-imposed except for key workers, construction and manufacturing

Read Entire Article